A dementia diagnosis is a life-altering moment, not just for the individual but for the entire family. The initial shock can quickly give way to a lot of questions, fear and sadness. Allow space and time to process, feel and grieve. While the road ahead will have its challenges, knowing the steps that you can take today can help you create a journey of compassion, dignity and quality care.
A loved one is diagnosed with cognitive changes, so what do you do now? Good care really makes a difference and I can tell you why. The more engaged a person living with dementia is, the more the cognitive decline is slowed. Neuroplasticity is defined as, “the brain’s ability to reorganize itself, modifying and strengthening neural connections.” Creating an environment where your loved one’s brain can grow and strengthen will improve the quality of life and can slow the progression of their disease.
The field of dementia research is rapidly changing, thanks in part to the increased attention these diseases have gotten over the past decade. Evolving research, drugs therapies, alternate therapies, physical and psycho-social strategies and new care techniques are all rapidly developing.
Having a plan for care will help tremendously. Educate yourself on your loved one’s specific disease(s), plan for the future together, prioritize connection and communication, create a safe and supporting environment and find a support network. Most importantly, continue to find moments of joy.
Most people are under the misguided belief that a dementia diagnosis means our loved ones’ minds are gone. This couldn’t be further from the truth. These diseases are not linear, but rather a nuanced dance where sometimes your loved one needs to be led and sometimes they can lead. It is important to focus on the strengths and abilities that remain for your loved one and capitalize on them.
Care shouldn’t have to wait until the person is nonverbal and bed bound. Care can begin at the point of diagnosis. Care applies to the individual living with dementia, the caregiver, spouse, etc. Here is a list of considerations:
- Allow the individual autonomy, including them in planning decisions
- Make sure the caregiver, often a spouse, is getting time to recharge and rejuvenate
- Take time to organize legal, financial and medical paperwork
Many spouses feel like it is their marital duty to care for their loved one. This can be difficult when the spouse is untrained and overwhelmed. This is where a skilled caregiver can be a lifesaver.
Having a trained, skillful, compassionate care provider is a must. There is a real difference in someone with caregiving “experience” and someone who is trained and certified in care related to cognitive changes. A skilled caregiver can:
- Organize enriching activities
- Assist with physical exercise
- Prepare meals and assist with nutrition
- Use appropriate communication and behavioral techniques
- Can teach family members techniques to improve their own interactions with loved ones
Before entrusting your loved one to a caregiver, it is important to be informed about the assistance your loved one needs. Good care can make a world of difference. Your loved one is worth it!